Rob Stone graduated from Walt Whitman High School in 2018. He takes Challenge Classes in music and art at Montgomery College. Rob writes poetry and uses his AAC device to do abstract painting with his eyes; you can see these on his website. He’s read from his work during the open mic period at several local reading series. He hopes one day to have an Etsy storefront at which he’ll sell T-shirts, cards and calendars with his painting and poetry on them. Rob is also a health care and disability rights activist, participating with Little Lobbyists’ advocacy efforts on Capitol Hill and in Annapolis. Rob has testified on disability issues before Maryland’s General Assembly. He completed The Arc of Maryland’s Partners in Policymaking course in September 2020.
Rob uses a Tobii/Dyanvox EyeMobile device to communicate, as well as yes/no handheld switches. He’s also a wheelchair user. Rob’s disabilities are a result of his ultra-rare disease, dystonia 16. You can learn more about Rob, his family, and his diagnostic journey through this video, a Big Red Bike Media production by Caroline Ziv. Rob lives with his family in Bethesda, Maryland